On Tuesday, September 11th, 2001, the world stopped and watched in open-mouthed horror at the images shown on TV. For Montana residents Rob and Sassy Giles, that day will be etched in their minds forever, as despite being nowhere near the east coast, that was the day Rob was diagnosed with Squamish Cell Carcinoma on his tonsils. He had cancer.
Advised immediately to find a doctor that specialized in this field, they happily stumbled across Dr. Jeffrey Haller MD, an otolaryngologist who had been working precisely in the field for the past ten years that Rob needed help with. What made everything click that little bit more easily was that he had recently moved from Salt Lake City to Missoula, Montana – practically on the doorstep of Rob and Sassy. The surgery was done at St. Pat’s hospital – a procedure that took 14 hours.
The operation went well and Rob spent the following 4 days heavily sedated in order to recuperate. Another 6 days passed before the decision was reached that he was well enough to go home. The medical team advised him that they wanted to keep him there until he could swallow.
Their remarkable cheerfulness they attribute to their unwavering faith. Even while Rob was having therapy in Arizona, Sassy flew home to have her own fight against melanoma cancer removed from her leg. This impossibly strong couple fighting hard against obstacles put in their way knowing that He was with them the whole time.
Although he was now in familiar surroundings, he noticed that his ability to swallow was diminishing. It turned out that his treatment of chemotherapy and the radiation had destroyed his epiglottis. Sadly, tumors continued to grow in Rob’s mouth, so he was unable to open his mouth. Halfway through his treatment, spots were found on Rob’s lungs. Since then, Rob has now been fed entirely by way of a tube fitted to his stomach.
Reflecting on his nutrition, his wife Sassy explained, “I make all of his food. Rob eats very healthy food. I am a fitness instructor as well as a figure competitor and Rob uses the same food as me. So for example for his breakfast he will put in the blender – yes all together- oatmeal, eggs, peanut butter, kale, bananas, strawberries, quinoa. Puree the whole batch and seal-a-meal it to freeze. So I made 11 seal-a-meal bags for breakfast lunch and dinner. Dinner will be fish, beef, chicken or salmon, lots of veggies (broccoli, kale, spinach, etc.), brown rice or quinoa and fruit. I add avocado or hummus too! He doesn’t eat sugar at all, no reason too, can’t taste any of the food since it goes directly to the stomach. We put it all in the cooler, frozen and he just thaws them out under hot water and uses a syringe to push the food into his stomach. Interesting way to eat huh!?”
The treatment hit Rob so hard that he was, for all intents and purposes out of commission in regards to work. This didn’t, however, ever stop him from going to church, even if it meant leaning on a friend or family member so that he could attend. His remarkable humor was evident throughout, especially when he would refer to the outpatient clinic as, “The Recliner Club”. Despite being understandably frustrated, he would never complain to the nurses and would crack jokes and always maintained his jovial sense of humor.
To this day, Rob hasn’t swallowed for seven and a half years and continues to fight battles on all fronts. Anemia, Shingles, foot and hand damage from the treatment he went through have all made life difficult for Rob, but throughout it all, he’s driven on, fought back and continued to smile the entire time. In March of 2007, Rob and Sassy visited Israel where they were baptized in the Jordan river and even renewed their wedding vows in Cana.
It was around November of 2008 when Rob noticed that he wasn’t getting enough air to breathe. He was concerned another tumor was growing. After being rushed to the hospital, a doctor saw that scar tissue had been growing and was effectively closing his windpipe. The treatment for this was to fit a tract tube. Yet another blow to the man already fighting immeasurably high odds.
While what he gained with the tract made breathing easier, his sodium and iron levels in his blood left him feeling weak. After 4 transfusions with iron and salt put into his system he was right back on track. Not long after this, he was presented with a new mountain bike on Father’s Day. Although understandably hesitant given what his body had gone through, he sat on the bike and went for it. His iron counts were good and after a while, finding he had gained 25 lbs. and was feeling a little stronger, his rides now measure between 20-30 miles at a time.
“Suffering comes. It’s bound to happen”, says Sassy, “but it’s how we respond to it that makes all the difference in the world. Rob chooses to remain faithful to God, committing himself to his faithful creator and continuing to do good with as many days as he has.”
Rob’s strength and will of steel will be tested this weekend when he tackles the Montana Sprint. Never one to shy away from something put in his way, he’s ready for a fight. Sassy smiles when she hears people shrug off a Spartan Race as, too difficult. Having already brawled with whatever demon that came across his path, he’s rolling up his sleeves and clenching his fists for another round. He’s already learned what it is to persevere, as Sassy knows.
“He did say to me that the one thing he would like to see from this, is that when people hear the most horrible words you could ever hear, which is “You have cancer”. Rob wants them to know there is always hope, but you have to fight for it and you have to believe. His motto during his treatment was, “I just have to beat it by one breath and I win! And he did win!”
See you at the finish line…
Tags: Cancer, Montana, Rob Giles